Unveiling the Complete Medical Burden of Hypoplastic Left Heart Syndrome: 18 Years of Insight from Childhood to Adolescence
Presented During:
Sunday, April 28, 2024: 11:50AM - 11:57AM
Metro Toronto Convention Center
Posted Room Name:
Room 716
Abstract No:
150
Submission Type:
Abstract Submission
Authors:
Amir Mehdizadeh-Shrifi (1), Muhammad Faateh (1), Kevin Kulshrestha (1), Haleh Heydarian (1), Russel Hirsch (1), Monir Hossain (2), Spencer Hogue (1), Awais Ashfaq (1), David Morales, Sr. (1)
Institutions:
(1) The Heart Institute, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, (2) Division of Biostatistics and Epidemiology, Cincinnati Children’s Hospital Medical Center, Cincinnat, Cincinnati, OH
Submitting Author:
Amir Mehdizadeh-Shrifi
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The Heart Institute, Cincinnati Children's Hospital Medical Center
The Heart Institute, Cincinnati Children's Hospital Medical Center
Co-Author(s):
Muhammad Faateh
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The Heart Institute, Cincinnati Children's Hospital Medical Center
The Heart Institute, Cincinnati Children's Hospital Medical Center
Kevin Kulshrestha
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The Heart Institute, Cincinnati Children's Hospital Medical Center
The Heart Institute, Cincinnati Children's Hospital Medical Center
Haleh Heydarian
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The Heart Institute, Cincinnati Children's Hospital Medical Center
The Heart Institute, Cincinnati Children's Hospital Medical Center
Russel Hirsch
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The Heart Institute, Cincinnati Children's Hospital Medical Center
The Heart Institute, Cincinnati Children's Hospital Medical Center
Monir Hossain
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Division of Biostatistics and Epidemiology, Cincinnati Children’s Hospital Medical Center, Cincinnat
Division of Biostatistics and Epidemiology, Cincinnati Children’s Hospital Medical Center, Cincinnat
Spencer Hogue
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The Heart Institute, Cincinnati Children's Hospital Medical Center
The Heart Institute, Cincinnati Children's Hospital Medical Center
Awais Ashfaq
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The Heart Institute, Cincinnati Children's Hospital Medical Center
The Heart Institute, Cincinnati Children's Hospital Medical Center
*David Morales, Sr.
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The Heart Institute, Cincinnati Children's Hospital Medical Center
The Heart Institute, Cincinnati Children's Hospital Medical Center
Presenting Author:
Amir Mehdizadeh-Shrifi
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Abstract:
Objective: While numerous studies view Hypoplastic Left Heart Syndrome (HLHS) through the lens of financial burden, an overall sense of total medical burden which includes total number of visitations, imaging, and encounters, are not part of the contemporary burden debate. We sought to describe a more complete analysis of burden from childhood to adolescence for a patient with HLHS to capture a more comprehensive view of the journey.
Methods: All children (≤ 18 years) with births from 2004-2022 were identified in the Pediatric Health Information System (PHIS). ICD-9/-10 codes were used for diagnosis of HLHS. Follow-Up was set at one, five, ten, fifteen and eighteen years of age.
Results: 18134 children were identified. 11239 were followed to 1 year of age (yo), 6194 to 5 yo, 2846 to 10 yo, 866 to 15 yo, and 151 to 18 yo. A 1 yo child spends a mean of 149 ± 221 days in hospital, has 27 ± 38 hospital encounters, and 147 ± 126 radiological exams (X-Rays: 74 ± 75, Ultrasound: 62 ± 54); total hospital cost ($) was 778214 ± 867389 (Inpatient: 713555 ± 843138) and imaging cost of 40981 ± 39766 (X-Ray: 7598 ± 7273). A 10 yo child spends a mean of 191 ± 313 days in hospital, has 46 ± 53 hospital encounters and 158 ± 123 radiologic exams (X-Rays: 77 ± 70, Ultrasound: 68 ± 50); total hospital costs were 756532 ± 731301 (Inpatient: 656230 ± 677488) and imaging costs of 43539 ± 43990 (X-Ray: 7676 ± 6575). An 18 yo child spends a mean of 223 ± 268 days in hospital, has 70 ± 81 hospital encounters and 187 ± 132 radiological exams (X-Rays: 93 ± 86, Ultrasound: 76 ± 60); total hospital cost ($) was 979964 ± 892171 (Inpatient: 838568 ± 800221) and imaging cost of 46323 ± 36405 (X-Rays: 8651 ± 7043).
Conclusion: HLHS represents a major burden for both children & family and rises throughout the patient's life. The present report offers a more comprehensive insight into the full medical burden at different ages and can give providers more information to help describe to patients and parents the journey in front of them.
Methods: All children (≤ 18 years) with births from 2004-2022 were identified in the Pediatric Health Information System (PHIS). ICD-9/-10 codes were used for diagnosis of HLHS. Follow-Up was set at one, five, ten, fifteen and eighteen years of age.
Results: 18134 children were identified. 11239 were followed to 1 year of age (yo), 6194 to 5 yo, 2846 to 10 yo, 866 to 15 yo, and 151 to 18 yo. A 1 yo child spends a mean of 149 ± 221 days in hospital, has 27 ± 38 hospital encounters, and 147 ± 126 radiological exams (X-Rays: 74 ± 75, Ultrasound: 62 ± 54); total hospital cost ($) was 778214 ± 867389 (Inpatient: 713555 ± 843138) and imaging cost of 40981 ± 39766 (X-Ray: 7598 ± 7273). A 10 yo child spends a mean of 191 ± 313 days in hospital, has 46 ± 53 hospital encounters and 158 ± 123 radiologic exams (X-Rays: 77 ± 70, Ultrasound: 68 ± 50); total hospital costs were 756532 ± 731301 (Inpatient: 656230 ± 677488) and imaging costs of 43539 ± 43990 (X-Ray: 7676 ± 6575). An 18 yo child spends a mean of 223 ± 268 days in hospital, has 70 ± 81 hospital encounters and 187 ± 132 radiological exams (X-Rays: 93 ± 86, Ultrasound: 76 ± 60); total hospital cost ($) was 979964 ± 892171 (Inpatient: 838568 ± 800221) and imaging cost of 46323 ± 36405 (X-Rays: 8651 ± 7043).
Conclusion: HLHS represents a major burden for both children & family and rises throughout the patient's life. The present report offers a more comprehensive insight into the full medical burden at different ages and can give providers more information to help describe to patients and parents the journey in front of them.
CONGENTIAL:
Single Ventricle Management
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