150. Unveiling the Complete Medical Burden of Hypoplastic Left Heart Syndrome: 18 Years of Insight from Childhood to Adolescence
Presented During: Congenital Rapid Fire Orals
Cincinnati Children's Hospital Medical center
Cincinnati, OH
United States - Contact Me
I graduated from Hannover Medical School (Germany) and then did my core curriculum at the University Hospital Basel in Switzerland. My main field of interest and reserch is congenital heart disease in children and adults. Due to my academic interest, I joined the cardio-thoracic surgery lab at the Cincinnati Children's Hospital Medical Center as a research fellow. I perform both clinical and translational animal research. My focus is on CHD with greater emphasis on single-ventricle palliation.
Sunday, April 28, 2024: 11:50 AM - 11:57 AM
7 Minutes
Metro Toronto Convention Center
Room: Room 716
Description
Objective: While numerous studies view Hypoplastic Left Heart Syndrome (HLHS) through the lens of financial burden, an overall sense of total medical burden which includes total number of visitations, imaging, and encounters, are not part of the contemporary burden debate. We sought to describe a more complete analysis of burden from childhood to adolescence for a patient with HLHS to capture a more comprehensive view of the journey.
Methods: All children (≤ 18 years) with births from 2004-2022 were identified in the Pediatric Health Information System (PHIS). ICD-9/-10 codes were used for diagnosis of HLHS. Follow-Up was set at one, five, ten, fifteen and eighteen years of age.
Results: 18134 children were identified. 11239 were followed to 1 year of age (yo), 6194 to 5 yo, 2846 to 10 yo, 866 to 15 yo, and 151 to 18 yo. A 1 yo child spends a mean of 149 ± 221 days in hospital, has 27 ± 38 hospital encounters, and 147 ± 126 radiological exams (X-Rays: 74 ± 75, Ultrasound: 62 ± 54); total hospital cost ($) was 778214 ± 867389 (Inpatient: 713555 ± 843138) and imaging cost of 40981 ± 39766 (X-Ray: 7598 ± 7273). A 10 yo child spends a mean of 191 ± 313 days in hospital, has 46 ± 53 hospital encounters and 158 ± 123 radiologic exams (X-Rays: 77 ± 70, Ultrasound: 68 ± 50); total hospital costs were 756532 ± 731301 (Inpatient: 656230 ± 677488) and imaging costs of 43539 ± 43990 (X-Ray: 7676 ± 6575). An 18 yo child spends a mean of 223 ± 268 days in hospital, has 70 ± 81 hospital encounters and 187 ± 132 radiological exams (X-Rays: 93 ± 86, Ultrasound: 76 ± 60); total hospital cost ($) was 979964 ± 892171 (Inpatient: 838568 ± 800221) and imaging cost of 46323 ± 36405 (X-Rays: 8651 ± 7043).
Conclusion: HLHS represents a major burden for both children & family and rises throughout the patient's life. The present report offers a more comprehensive insight into the full medical burden at different ages and can give providers more information to help describe to patients and parents the journey in front of them.
Authors
Amir Mehdizadeh-Shrifi (1), Muhammad Faateh (1), Kevin Kulshrestha (1), Haleh Heydarian (1), Russel Hirsch (1), Monir Hossain (2), Spencer Hogue (1), Awais Ashfaq (1), David Morales, Sr. (1)
Institutions
(1) The Heart Institute, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, (2) Division of Biostatistics and Epidemiology, Cincinnati Children’s Hospital Medical Center, Cincinnat, Cincinnati, OH
Methods: All children (≤ 18 years) with births from 2004-2022 were identified in the Pediatric Health Information System (PHIS). ICD-9/-10 codes were used for diagnosis of HLHS. Follow-Up was set at one, five, ten, fifteen and eighteen years of age.
Results: 18134 children were identified. 11239 were followed to 1 year of age (yo), 6194 to 5 yo, 2846 to 10 yo, 866 to 15 yo, and 151 to 18 yo. A 1 yo child spends a mean of 149 ± 221 days in hospital, has 27 ± 38 hospital encounters, and 147 ± 126 radiological exams (X-Rays: 74 ± 75, Ultrasound: 62 ± 54); total hospital cost ($) was 778214 ± 867389 (Inpatient: 713555 ± 843138) and imaging cost of 40981 ± 39766 (X-Ray: 7598 ± 7273). A 10 yo child spends a mean of 191 ± 313 days in hospital, has 46 ± 53 hospital encounters and 158 ± 123 radiologic exams (X-Rays: 77 ± 70, Ultrasound: 68 ± 50); total hospital costs were 756532 ± 731301 (Inpatient: 656230 ± 677488) and imaging costs of 43539 ± 43990 (X-Ray: 7676 ± 6575). An 18 yo child spends a mean of 223 ± 268 days in hospital, has 70 ± 81 hospital encounters and 187 ± 132 radiological exams (X-Rays: 93 ± 86, Ultrasound: 76 ± 60); total hospital cost ($) was 979964 ± 892171 (Inpatient: 838568 ± 800221) and imaging cost of 46323 ± 36405 (X-Rays: 8651 ± 7043).
Conclusion: HLHS represents a major burden for both children & family and rises throughout the patient's life. The present report offers a more comprehensive insight into the full medical burden at different ages and can give providers more information to help describe to patients and parents the journey in front of them.
Authors
Amir Mehdizadeh-Shrifi (1), Muhammad Faateh (1), Kevin Kulshrestha (1), Haleh Heydarian (1), Russel Hirsch (1), Monir Hossain (2), Spencer Hogue (1), Awais Ashfaq (1), David Morales, Sr. (1)
Institutions
(1) The Heart Institute, Cincinnati Children's Hospital Medical Center, Cincinnati, OH, (2) Division of Biostatistics and Epidemiology, Cincinnati Children’s Hospital Medical Center, Cincinnat, Cincinnati, OH
Presentation Duration
You will have a 4 minute presentation followed by 3 minutes of discussion from the audience. All presenters must adhere to the presentation and discussion times provided. The AATS will begin to play music once your speaking time is exceeded.